Rare Disease Month Q & A with Marsha Krone, Local MPN Patient
Describe your role in the MPN community.
My role is more global within the MPN community. I send personalized happy birthday pillowcases to MPN patients having stem cell transplants.
In your opinion, what is the significance of Rare Disease Month/Day pertaining to MPNs?
Rare Disease Month/Day brings awareness to the lesser known disease. It is a great time to educate the community about the need to support research for new treatments and/or a cure.