Updated: Jun 18, 2021
As MPN Peoria continues to raise awareness of MPNs, we hope to create a community of support and understanding. We thank our local friend, MPN patient and advocate, Marsha, for sharing her story about what it has been like living with an MPN. We thank you for your compassion and support.
1. How old were you when you were diagnosed with Essential Thrombocythemia, and what treatments did your disease require at that time?
I was 30 years old when I was diagnosed with ET. I decided to participate in a trial drug called Anagrelide.
2. How long ago did your ET convert to Myelofibrosis (MF)?
I converted to MF, Grade 2 in 2016
3. How has MF affected your quality of life, and what symptoms do you have because of your MPN?
Fatigue can be the biggest issue. When I experience this, I listen to my body and rest until I feel better. Symptoms include a sore mouth (not all the time) and inflammation. Exercise, rest, eating healthy food, and prayer play a big part in enhancing my quality of life.
4. What treatment are you currently using for your MF?
I take Hydroxyurea (an anti-cancer drug) and low-dose aspirin.
5. What would you like people to know about MPNs?
An MPN can feel like a runaway train. You cannot do anything to prevent progression. Since progression is out of my control, I try to learn all I can about new treatments and new development concerning MPN's. I choose to do be my best and leave the rest up to God.
-Marsha, Local MPN Patient
Our primary goal at MPN Peoria is to be able to financially support research for new treatments and ultimately for a cure for these rare blood cancers called MPNs, all the while supporting and empowering those afflicted by the disease.
LEARN MORE: https://www.mpnpeoria.org
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