Rare Disease Day is February 28

What?

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

Why?

Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. It is a day dedicated to improve knowledge among the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.